Navigating a Complex Blood Cancer
Ten years ago, Thom Filicia’s brother was diagnosed with myelofibrosis (MF; my-ah-lo-fye-BRO-sis).
For his brother and his family, navigating the unknowns of the disease and charting the right course for his care was challenging. Fortunately, Thom was a match to be his brother’s bone marrow donor. Now, Thom is raising awareness of this complex blood cancer to help others impacted by the disease through the Mapping Myelofibrosis initiative.
Thom Filicia
Interior & Product Designer, TV Personality and Myelofibrosis Advocate
Thom Filicia is a spokesperson for GSK
Ten years ago, Thom Filicia’s brother was diagnosed with myelofibrosis (MF; my-ah-lo-fye-BRO-sis).
For his brother and his family, navigating the unknowns of the disease and charting the right course for his care was challenging. Fortunately, Thom was a match to be his brother’s bone marrow donor. Now, Thom is raising awareness of this complex blood cancer to help others impacted by the disease through the Mapping Myelofibrosis initiative.
Thom Filicia is a spokesperson for GSK
...because you, or someone you love, wants to learn more about MF, a complex blood cancer.
Each person experiences MF differently, which can make navigating symptoms daunting. Despite increased focus in the past decade, there is a need for a clearer road map to help those impacted by MF and their loved ones.
Myelofibrosis impacts
Thom's Story
TEXT ON SCREEN:
Mapping Myelofibrosis Logo
Thom Filicia, Interior & Product Designer and TV Personality
THOM FILICIA:
“You may know me by my role as an interior designer on Queer Eye for the Straight Guy, but you may be surprised to know I fulfilled a much different role a decade ago.”
“At that time, my brother was diagnosed with myelofibrosis, which is a blood cancer.”
“When he was diagnosed, there were many questions, few treatment options and hard-to-understand resources to sift through.”
“As my brother and his immediate family charted the course for his care, we were told that a bone marrow transplant was necessary. Fortunately, I was a match to be his donor.”
“Since his diagnosis, there have been exciting innovations in treatment, but a need remains for more resources for those experiencing symptoms without a clear diagnosis, and for those living with the disease.”
“Through this experience, we’ve recognized the importance of being able to chart one’s own path - whether you have been diagnosed, or you know someone who has been impacted.”
“I've joined GSK and the Mapping Myelofibrosis initiative to increase awareness of this blood cancer. This initiative aims to connect the community with educational information and stories to help navigate all aspects of the disease.”
“I know firsthand how important it is to have the discussions with your doctor and access to resources in order to help make important decisions around your care. This may lead to better and more hopeful outcomes.”
“Explore MappingMF.com to find resources and learn more about myelofibrosis.”
TEXT ON SCREEN:
Mapping Myelofibrosis logo
Explore MappingMF.com for more information.
Trademarks are owned by or licensed to the GSK group of companies.
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©2023 GSK or licensor.
MMLCOCO230013 July 2023
Produced in USA.
Hear Thom’s story and click the button below to hear from others in the community.
Explore the Signs & Symptoms
Read about the signs and symptoms you or your loved one may experience with myelofibrosis and talk to your healthcare provider to learn more.
Arriving at a Diagnosis
There are various ways MF can be diagnosed. Explore those ways here.
Identifying Your Care Team
Get to know the healthcare professionals you may meet over the course of your care.
Navigating the Disease
You know your body best. By working with your healthcare team, you can take an active role in your MF care. Ask your healthcare team questions, keep an eye on your symptoms and speak up when you notice a change in your symptoms or health. Partner closely with your healthcare team to discuss MF and how often you should come in for tests and check-ups.
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