Taking Charge of Your Myelofibrosis (MF) Care
The resources below are designed to help those impacted by MF navigate various aspects of the disease. If you need additional support throughout your experience, there are organizations that can help.
Your MF Guide
Download and print the Myelofibrosis Guide so that you have important information about myelofibrosis at your fingertips.
MF 101
MF is a complicated disease. The MF 101 guide provides useful information and you can take it on the go.
Living with MF
Whether you’ve been living with MF or are newly diagnosed, this guide can provide strategies for understanding your disease and offer tips for telling others.
MF Symptoms
The symptoms of MF can be different for each person. Learn about some of the common signs and symptoms like anemia, enlarged spleen, low platelet count, and other MF symptoms.
MF Nutritional Considerations & Recipes
This cookbook offers healthy eating options to people with or managing myelofibrosis.
What to Eat Info Sheet
Information sheet for those impacted by myelofibrosis, which includes foods to consider and foods to limit.
Dear Friends and Family Letter
People living with myelofibrosis may face challenges with their disease & its symptoms. Talking about it with family and friends may be difficult. Download a template letter with helpful communication tips and fill in the blanks to talk to loved ones about MF and the potential emotional/physical impacts it may have on your daily life.
American Cancer Society
Blood & Marrow Transplant Information Network
Cancer Care
Cancer Support Community
HealthTree Foundation
Leukemia & Lymphoma Society®
MPN Advocacy & Education International
MPN Cancer Connection
MPN Education Foundation
MPN Research Foundation
National Organization for Rare Disorders
NCCN Foundation